Le Phare

Amidst the vibrant tapestry of Montreal, Le Phare shines as a beacon of hope. Le Phare, Children and Families (Le Phare, Enfants et Familles), is a unique pediatric palliative care resource in Quebec. Founded in 1999, Le Phare provides care and support for children with life-threatening illnesses and their families. Le Phare offers a comprehensive and holistic approach to care. They address the physical, psychological, social, and spiritual aspects of suffering. Their aim is to improve the quality of life for both the child and their family. Unlike typical pediatric hospitals, Le Phare provides a “community setting.” Their Maison André-Gratton is Quebec’s first pediatric palliative care facility. It offers 24-hour nursing care and medical expertise in a home-like environment. At Maison André-Gratton, children can participate in various activities. These include arts and crafts and pet therapy, reflecting their motto, “S’amuser jusqu’au bout de la vie” (Having fun until the end of life). Le Phare also emphasizes following the child throughout their illness journey. Dr. Silvana Barone, Medical Director at Le Phare, explains that pediatric palliative care isn’t solely focused on end-of-life. It addresses the ongoing needs of children with complex chronic diseases. The team at Le Phare also works to encourage early referrals. They believe early involvement allows for better support and communication with the family about their goals and wishes. Le Phare’s flexibility is a key strength. They adapt to the changing needs of the child and family as the illness progresses. This adaptability extends to end-of-life care, where Le Phare provides a serene and peaceful environment. Dr. Barone contrasts this with the often chaotic atmosphere of an ICU. At Maison André-Gratton, families have access to large suites and comprehensive support services. Le Phare’s dedicated interdisciplinary team, including medical professionals, therapists, artists, and volunteers, makes this exceptional care possible. They strive to create a gentle and dignified end-of-life experience, minimizing regrets for both children and their families.